Delhi High Court ruled that a proposal was developed to promote the central governments national rare diseases initiative . The initiative became operational under a court order in 2021, but required to be released .
According to the Delhi High Court, a proposal was developed today to widely promote the central government's national rare diseases initiative, which involved a series of petitions for the promotion of children suffering from rare diseases, such as Duchenne Muscular Dystrophy (DMD) and Mucopolysaccharidosis II or MPS II (Hunter Syndrome), among other things.The court argued that although the initiative became operational under a court order in 2021, it required to be released MPS II is a rare disease that is passed on in families and mainly affects boys.The court noted that due to a shortage of funds, the clinical trials for an indigenous treatment by a company has been delayed, and that it should petition the central government for instructions on how to proceed with the tests.The court also required the AIIMS to release an affidavit detailing its funding, the patients, the drug regulators' approval, and the timeline for launching the trials.